Aligning Cerebellar Disorders Therapy Development with Patient and Caregiver Priorities
We’re pleased to share the following invitation from Dr. Lauren Sankary at UT Southwestern Medical Center. Dr. Sankary is conducting a voluntary research study exploring the perspectives of patients, caregivers, clinicians, and researchers involved in cerebellar conditions and related therapies. This aligns with our shared goal of advancing understanding and collaboration in this field.
If this topic is relevant to you as a patient, caregiver, clinician, researcher, or advocate, you may wish to consider participating. Details from Dr. Sankary’s research team, including eligibility and contact information, are provided below.
We are writing to let you know about an opportunity to participate in a voluntary research study about understanding the goals of patients, caregivers, clinicians, and researchers with respect to research into new therapies. This study is being conducted by Lauren Sankary, an Assistant Professor in the Department of Neurological Surgery at UT Southwestern Medical Center.
Participation includes completion of three surveys in a three-round modified Delphi process. Participating in this study is expected to take about 60 minutes (1 hour).
This study will be enrolling individuals diagnosed with cerebellar conditions, their caregivers and experts in the field, including clinicians, researchers, and representatives from funding bodies and patient advocacy organizations.
If you would like additional information about this study, please contact us at Lauren.Sankary@UTSouthwestern.edu or 214-648-3279 (M-F,9-5 CST).
Completion of the survey using the link below will indicate your agreement to participate after reading the information sheet describing the study in further detail. You will receive one more email invitation to complete this survey if we do not receive a response from you. If you are not interested in this study, or do not wish to be contacted about future research opportunities, please let us know by emailing or calling the contact information provided above so that we may permanently remove you from our contact list.
Thank you for your consideration, and once again, please do not hesitate to contact us if you are interested in learning more about this Institutional Review Board approved project.
Name: Lauren Sankary, JD, MA, HED-C
Title: Principal Investigator UT Southwestern Medical Center
Email: Lauren.Sankary@UTSouthwestern.edu
Phone: 214-648-3279
Secondary Contact, Research Assistant
Name: Harshikasai Kellampalli, B.S.
Title: Clinical Research Assistant, Department of Neurological Surgery UT Southwestern Medical Center
Email: Harshikasai.Kellampalli@UTSouthwestern.edu
